Patient of the Month- Kirra S.
If you would like to make a donation to Soft Bones in honor of Kirra, please click the button below! Donate Here Kirra was diagnosed…
Meet Lucy George
Meet Lucy George Relationship to HPP: I am the Patient Engagement Coordinator here at Soft Bones! Joined: I have been here since November 2023, coming…
Caregiver Corner- Sharon T.
My connection to HPP is my husband David. I support my husband in his HPP journey. The most rewarding aspect of being a caregiving is…
Patient of the Month- Carol K.
If you would like to make a donation to Soft Bones in honor of Carol, please click the button below! Donate Here Others have told…
Gene Therapy for Hypophosphatasia: Current Management and Future
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Circulating Micro-RNAs in Patients with Hypophosphatasia Results of the first micro-RNA analysis in HPP
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Enzyme replacement therapy for hypophosphatasia — The current paradigm
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First reported magnesium pyrophosphate kidney stone prompts diagnosis of hypophosphatasia
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New insights into the landscape of ALPL gene variants in patients with hypophosphatasia from the Global HPP Registry
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Improvement in quality of life after asfotase alfa treatment in adults with pediatric-onset hypophosphatasia: data from 5 patient-reported outcome measures
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