Use of real‐world evidence in regulatory decisions for rare diseases in the United States—Current status and future directions
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When I was born in 1968, my parents assumed everything was fine. They took me home and being her 1st child, my mom thought everything…
This is me, Joann. Living with a rare disease. Hiding for years in my DNA. It snuck up on me in the prime of my…
If you would like to make a donation to Soft Bones in honor of Emily, please click the button below! Donate Here Hi, this is…
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Hi, we are twin sisters Amy and Suzanne, we have been dealing with symptoms of HPP for a lifetime. Our diagnosis seemed as though it…
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