Understanding the Role of OneSource & PANTHERx Rare in Patient Support

Please download and view this fact sheet with the link below. Download Fact Sheet
Hi! I’m Denise and I was diagnosed with childhood-onset hypophosphatasia (HPP) at age 50. As a child, I remember that all my permanent teeth…
My name is Heather R. I am a 54 year old, white female, married with twin boys, age 24. I was adopted at 3 months…
My name is Sara and I have Hypophosphatasia (HPP). I am an individual with a rare disease, a fiancé and mother to two toddlers, a…
Hi, I am Nellie and this is my HPP story: I absolutely love spending time with my family. My husband and I have two sons,…
The US Hypophosphatasia Foundation
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