Traveling with Strensiq™ (Asfotase Alfa) softbones October 14, 2020 0 Comments Please download and view this fact sheet with the link below. Download Fact Sheet
Patient of the Month- Alison S. If you would like to donate to Soft Bones in honor of Alison, please click the button below! Donate Here Hi, I’m Alison, and I’m… Margaret Robb May 1, 2025 0 Comments
Blynda’s Journey with HPP When I was born in 1968, my parents assumed everything was fine. They took me home and being her 1st child, my mom thought everything… Taralyn Naslonski November 6, 2020 0 Comments
Patient of the Month- Emily H. If you would like to make a donation to Soft Bones in honor of Emily, please click the button below! Donate Here Hi, this is… Margaret Robb April 1, 2024 0 Comments
Living with HPP: A St. Louis Shriner’s Trip Hi, my name is Danielle and my children Grayson (8yrs) and Briley (4yrs) have odonto/mild childhood Hypophosphatasia. We live in Austin, TX. My family and… Taralyn Naslonski November 6, 2020 0 Comments
Patient of the Month- Carol L. My HPP story started at a very young age. I was quite young and our bedroom was upstairs, and the bathroom was downstairs. I would… emma_richter February 1, 2023 0 Comments
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