The Emotional Effects of Living with a Chronic Rare Disease – (2020 Soft Bones Virtual Meeting)

They are identical mirror twins who overcame all odds to survive their arrival. Isabella & Julia were born at 35 weeks and 6 days. Brought…
Adrianna Tuomi, a licensed clinical social worker and Soft Bones Community Member and Region Lead will be presenting a webinar on the psychological effects of…
WRITTEN BY JULIA C. If you sat in a class with me, there are a few things you might notice right away. I talk a…
Hello, my name is Cheryl Jackson and my journey with HPP began last December when I was diagnosed at the age of 48, but as…
Hi, I am Nellie and this is my HPP story: I absolutely love spending time with my family. My husband and I have two sons,…
The US Hypophosphatasia Foundation
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