Stories – Soft Bones

Caregiver Corner – Kara S.

1. What is your relationship to HPP? My son Quinn was diagnosed with HPP 13 years ago at the age of 3 after exhibiting symptoms since…

Margaret Robb March 13, 2025

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Caregiver Corner- Darrell K.

What is your relationship to HPP? My wife, Blynda, has hypophosphatasia (HPP). She has two genes and was diagnosed in infancy. Both our adult children carry…

Margaret Robb December 14, 2024

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Caregiver Corner- Sharon T.

My connection to HPP is my husband David. I support my husband in his HPP journey. The most rewarding aspect of being a caregiving is…

Margaret Robb September 9, 2024

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Caregiver Corner- Ellen K.

My parents and I have one HPP gene. My younger sister has two HPP mutations. With her in a wheelchair and being short I do…

Margaret Robb April 24, 2024

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Mail Address (P.O Box)
The US Hypophosphatasia Foundation
141 Hawkins Place, #267
Boonton, NJ 07005, USA.

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Office Address (Location for meetings and events)
1719 NJ-10, Suite 315
Parsippany, NJ 07054

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