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    Tag: hypophosphatasia

    Patient of the Month- Elissa S.

    If you would like to donate to Soft Bones in honor of Elissa, please click the button below!  Donate Here Where to begin? It’s been…

    margaret-robb
    Margaret Robb December 17, 2025
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    Patient of the Month- Frey H.

    If you would like to donate to Soft Bones in honor of Frey, please click the button below!  Donate Here My name is Frey. I’m…

    margaret-robb
    Margaret Robb December 1, 2025
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    Patient of the Month- James S.

    If you would like to donate to Soft Bones in honor of James, please click the button below!  Donate Here By James’s mom James is…

    margaret-robb
    Margaret Robb November 1, 2025
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    Patient of the Month- Scarlett P.

    If you would like to donate to Soft Bones in honor of Scarlett, please click the button below!  Donate Here What an honor to share…

    margaret-robb
    Margaret Robb October 1, 2025
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    Patient of the Month- Ryan V.

    If you would like to donate to Soft Bones in honor of Ryan, please click the button below!  Donate Here Ryan’s story as told by…

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    Margaret Robb September 1, 2025
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    Patient of the Month- Nikki W.

    If you would like to donate to Soft Bones in honor of Nikki, please click the button below!  Donate Here Hi! I am Nikki. I…

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    Margaret Robb August 1, 2025
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    Key Learnings from Clinical Research and Real World Evidence on Asfotase Alfa Effectiveness in Hypophosphatasia10 Years Post-Approval

    To read more please click on the link below. Read Article

    margaret-robb
    Margaret Robb July 29, 2025
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    Medical Management of Hypophosphatasia: Review of Data on Asfotase Alfa (March, 2025) Kathryn McCrystal Dahir and Nancy S. Dunbar

    To read more please click on the link below. Read Article

    margaret-robb
    Margaret Robb July 10, 2025
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    Patient of the Month- Cleo H.

    If you would like to donate to Soft Bones in honor of Cleo, please click the button below!  Donate Here When Cleo was about 2…

    margaret-robb
    Margaret Robb June 1, 2025
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    Patient of the Month- Alison S.

    If you would like to donate to Soft Bones in honor of Alison, please click the button below!  Donate Here Hi, I’m Alison, and I’m…

    margaret-robb
    Margaret Robb May 1, 2025
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    Mail Address (P.O Box)
    The US Hypophosphatasia Foundation
    141 Hawkins Place, #267
    Boonton, NJ 07005, USA.

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