Soft Bones Very Own Evie Shares Her Story With Charles River Labs in a Podcast And Video
To read more please click the link below.
View Here
Related Articles
Living with HPP: Sherri P.
My name is Sherri Palackdharry, I have Hypophosphatasia along with two of my daughters, Maya, 16 and Syreeta, 21. Our journey began when Maya was…
My Life’s Beginning Chapters: Julia C.
WRITTEN BY JULIA C. If you sat in a class with me, there are a few things you might notice right away. I talk a…
Mei Mei’s Story
Not long ago, Becky R. and her husband adopted a little baby girl, Mei Mei, from China. When she was first adopted, doctors were worried…
Living with HPP: Aubrey’s Story
When I found out I was pregnant, the thought of my innocent little baby having an ultra-rare disease never crossed my mind. I was asking…
Living with HPP- Leia
Hi, my name is Laura Vondrick and I’m writing on behalf of my daughter Leia who was diagnosed with HPP in July 2020. Our family…
Responses