Join Us in Recognizing

RARE DISEASE DAY

February 28th, 2026

Join us in Recognizing

Rare Disease Day

Feb. 28th, 2026

Rare Disease Day is an annual international event that highlights rare diseases as a public health concern. It occurs on the last day of February. This year, Rare Disease Day is on Saturday, February 28th.

Ways to Get Involved

Stripe for Rare Disease Day

Change your profile picture to include this special Rare Disease Day frame to show your support.

Send Profile Photo

Donate to Soft Bones

Consider donating in honor of someone living with HPP, in support of research and a cure, & much more

Donate

Wear Your HPP Swag

Stock up on Soft Bones merch perfect for Rare Disease Day and World HPP Day to raise awareness.

Shop for a Cause

Share Your Story and Listen to Others

Share your story on social media, record a podcast, post a picture, or journal. Read about HPP patients, their stories of diagnosis and living with the disease in our blog.

Learn More

Amplify Your Voice

Make sure to tag us on social media and use hashtags! #SoftBonesHPP #RareDiseaseDay #ShowYourColour

Change Your Zoom or Google Meet Background

Have an online meeting coming up? Make sure to change your Zoom background to raise awareness of HPP.

Download Background

Rare Disease Day Profile Frame

Update your social media profile picture to stripe out for Rare Disease Day!

File(Required)

Submit photos that you want put in the frame here. Up to 2 .PNGs and/or .JPGs may uploaded.

Drop files here or

Accepted file types: jpg, png, jpeg, heic, Max. file size: 50 MB, Max. files: 2.

Choose a color for your frame(Required)

Name(Required)

Input the first name(s) of the people in your photos. This will help to keep things organized.

Email(Required)

In order to receive your photo(s) in the frame, please provide your email so Alex can send them to you.

Rare Disease Day Bingo!

We’re just a couple of weeks away from Rare Disease Day, and we’re marking the countdown with action, awareness, and a little fun.

Join our Rare Disease Day Bingo Challenge and turn everyday moments into powerful advocacy. Post or share a story each time you complete a Bingo square and tag @SoftBonesHPP so we can reshare and cheer you on.

Each time you complete a Bingo line, across, down, or diagonal, it earns you one entry into our Rare Disease Day hoodie raffle, up to a full card (10x). On Rare Disease Day, one winner will be randomly selected to receive a hoodie of their choice.

The more you share and post, the more chances you have to win. Let’s fill those boards and make Rare Disease Day impossible to ignore. Click HERE to download the Bingo Board!

I Love Someone Rare

Download and print the "I Love Someone Rare" visual. Take a photo with the poster and share it on social media.

Shareable landscape "I Love Someone With HPP"

I Care About Rare

Download and print the "I Love Someone With HPP" visual. Take a photo with the poster and share it on social media.

Shareable landscape "I Care About Rare"

Rare Disease Day Logo

Download and print this visual. Take a photo with the poster and share it on social media.

Shareable landscape Rare Disease Day Logo

Our Partners

In addition to supporting patients with hypophosphatasia (HPP), part of our mission is to look for synergies with other organizations to ensure that the needs of our patient community are met. Many issues are common among other rare diseases, such as insurance denials and access issues, which can be more effectively addressed by coming together with other non-profits to amplify our voices.

Some of these groups we frequently partner with are listed below. We encourage you to learn more about our partners and how they can support you and your family. Together, we can join others to help amplify the public health issues we face as a rare community.

Join Us in Recognizing

RARE DISEASE DAY

February 28th, 2026