Thank You for Recognizing
RARE DISEASE DAY
February 28th, 2026
Join us in Recognizing
Rare Disease Day
Feb. 28th, 2026
Rare Disease Day is an annual international event that highlights rare diseases as a public health concern. It occurs on the last day of February. This year, Rare Disease Day was on Saturday, February 28th.
Faces of HPP Webinar
To represent our HPP population, watch our webinar and meet some of your fellow Soft Bones patients. Learn about the various forms of HPP and how it can differ from person to person. We encourage you to share with friends and families who may not be familiar with the disease.
Rare Disease Profile Frame Collages
Rare Disease Day Bingo Winner!
Congratulations, Scarlett P., for winning our Rare Disease Bingo Board challenge! Thank you to everyone who participated and shared each time you completed a Bingo square and row. We hope you had fun while raising awareness along the way.
Ways to Get Involved
Donate to Soft Bones
Wear Your HPP Swag
Share Your Story and Listen to Others
Amplify Your Voice
Change Your Zoom or Google Meet Background
Rare Disease Day Bingo!
We’re just a couple of weeks away from Rare Disease Day, and we’re marking the countdown with action, awareness, and a little fun.
Join our Rare Disease Day Bingo Challenge and turn everyday moments into powerful advocacy. Post or share a story each time you complete a Bingo square and tag @SoftBonesHPP so we can reshare and cheer you on.
Each time you complete a Bingo line, across, down, or diagonal, it earns you one entry into our Rare Disease Day hoodie raffle, up to a full card (10x). On Rare Disease Day, one winner will be randomly selected to receive a hoodie of their choice.
The more you share and post, the more chances you have to win. Let’s fill those boards and make Rare Disease Day impossible to ignore. Click HERE to download the Bingo Board!
I Love Someone Rare
I Care About Rare
Rare Disease Day Logo
Our Partners
In addition to supporting patients with hypophosphatasia (HPP), part of our mission is to look for synergies with other organizations to ensure that the needs of our patient community are met. Many issues are common among other rare diseases, such as insurance denials and access issues, which can be more effectively addressed by coming together with other non-profits to amplify our voices.
Some of these groups we frequently partner with are listed below. We encourage you to learn more about our partners and how they can support you and your family. Together, we can join others to help amplify the public health issues we face as a rare community.