Bone Zone

Welcome To
The Bone Zone

Read about HPP patients, their stories of diagnosis and living with the disease in our blog, The Bone Zone.

All Our Stories

Living with HPP- Sierra

Hello..my name is Shelly and I am Sierra’s mother..I had gotten pregnant with Sierra and thought everything was fine..the ultrasounds...

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Living with HPP- Courtney

In the spring of 2020, I was officially diagnosed with Hypophosphatasia through genetic testing. In retrospect, the signs and symptoms...

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Deklyn’s Story

When my husband and I got pregnant with our first baby, it never crossed my mind that something could possibly...

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Deklyn’s Story

When my husband and I got pregnant with our first baby, it never crossed my mind that something could possibly...

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Evin’s Story

In December of 2016 our eleven year old son was diagnosed with Hypophosphatasia (HPP). I could not even say the...

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Holly’s Story

I was 22 years old when you were born and had a kindergartner, your brother, as well. I knew something...

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