Bone Zone

If you would like to make a donation to Soft Bones in honor of Peyton, please click the button below!...

If you would like to make a donation to Soft Bones in honor of Mason, please click the button below!...

If you would like to make a donation to Soft Bones in honor of Natalie, please click the button below!...

If you would like to make a donation to Soft Bones in honor of August, please click the button below!...

If you would like to make a donation to Soft Bones in honor of Evan, please click the button below!...

My name is Haley Gast and I have been diagnosed and living with HPP for just over 33 years. Prior...

My name is Quinn Hoover and I am living with HPP. I was born January 12th, 2009, in Omaha, Nebraska. ...

My HPP story started at a very young age. I was quite young and our bedroom was upstairs, and the...

My Journey with my Soft Bones: The only hint my parents had that something was wrong with me was my...

Hi Everyone,  Instead of Rachel and I (Christine) writing two separate stories, we thought that since our lives are so...

Hello, My name is Morgan Salomon, and I am 16 years old, and I’d like to tell you a little...

I was born premature, broke bones easily throughout childhood, and had a few setbacks with development. My parents didn’t think...

  Hi! I’m Denise and I was diagnosed with childhood-onset hypophosphatasia (HPP) at age 50. As a child, I remember...

Hi, I am Nellie and this is my HPP story:  I absolutely love spending time with my family. My husband...

I became aware of HPP when I was about 38 years old, but in retrospect, I’ve been on this journey...

Hi, we are twin sisters Amy and Suzanne, we have been dealing with symptoms of HPP for a lifetime. Our...

Hello..my name is Shelly and I am Sierra’s mother..I had gotten pregnant with Sierra and thought everything was fine..the ultrasounds...

In the spring of 2020, I was officially diagnosed with Hypophosphatasia through genetic testing. In retrospect, the signs and symptoms...

My name is Nele from Belgium and I have hypophosphatasia. The first time I heard about HPP the look on...

My name is Amy. I am a 53 year old newly diagnosed member of the HPP community. I have been...

Hi, my name is Laura Vondrick and I’m writing on behalf of my daughter Leia who was diagnosed with HPP...

Born in 1960 with broken bones and a large fontanel they knew something was wrong. By the age of 3...

My journey with HPP began when I was 16 but I just didn’t know it. My husband, Donnie and I...

Hello, my name is Cheryl Jackson and my journey with HPP began last December when I was diagnosed at the...

My name is Cami Rush and I am the mother to three children. I have an 18 year old son, Connor...

I became aware of HPP when I was about 38 years old, but in retrospect I’ve been on this journey...

Have you ever had the ultrasound tech stop what she was doing, and say she needed to go get the...

When I was born in 1968, my parents assumed everything was fine. They took me home and being her 1st...