Welcome To
The Bone Zone
Read about HPP patients, their stories of diagnosis and living with the disease in our blog, The Bone Zone.

All Our Stories
Patient of the Month- Peyton W.
If you would like to make a donation to Soft Bones in honor of Peyton, please click the button below!...
Read MorePatient of the Month- Mason P.
If you would like to make a donation to Soft Bones in honor of Mason, please click the button below!...
Read MorePatient of the Month- Natalie S.
If you would like to make a donation to Soft Bones in honor of Natalie, please click the button below!...
Read MorePatient of the Month- August B.
If you would like to make a donation to Soft Bones in honor of August, please click the button below!...
Read MorePatient of the Month- Evan W.
If you would like to make a donation to Soft Bones in honor of Evan, please click the button below!...
Read MorePatient of the Month- Haley G.
My name is Haley Gast and I have been diagnosed and living with HPP for just over 33 years. Prior...
Read MorePatient of the Month- Quinn H.
My name is Quinn Hoover and I am living with HPP. I was born January 12th, 2009, in Omaha, Nebraska. ...
Read MorePatient of the Month- Carol L.
My HPP story started at a very young age. I was quite young and our bedroom was upstairs, and the...
Read MorePatient of the Month- Sharon M.
My Journey with my Soft Bones: The only hint my parents had that something was wrong with me was my...
Read MorePatient of the Month- Rachel S. and Christine S.
Hi Everyone, Instead of Rachel and I (Christine) writing two separate stories, we thought that since our lives are so...
Read MorePatient of the Month- Morgan S.
Hello, My name is Morgan Salomon, and I am 16 years old, and I’d like to tell you a little...
Read MorePatient of the Month- Nicole S.
I was born premature, broke bones easily throughout childhood, and had a few setbacks with development. My parents didn’t think...
Read MorePatient of the Month- Denise K.
Hi! I’m Denise and I was diagnosed with childhood-onset hypophosphatasia (HPP) at age 50. As a child, I remember...
Read MorePatient of the Month- Nellie S.
Hi, I am Nellie and this is my HPP story: I absolutely love spending time with my family. My husband...
Read MorePatient of the Month- Chris D.
I became aware of HPP when I was about 38 years old, but in retrospect, I’ve been on this journey...
Read MorePatients of the Month- Amy and Suzanne
Hi, we are twin sisters Amy and Suzanne, we have been dealing with symptoms of HPP for a lifetime. Our...
Read MoreLiving with HPP- Sierra
Hello..my name is Shelly and I am Sierra’s mother..I had gotten pregnant with Sierra and thought everything was fine..the ultrasounds...
Read MoreLiving with HPP- Courtney
In the spring of 2020, I was officially diagnosed with Hypophosphatasia through genetic testing. In retrospect, the signs and symptoms...
Read MoreLiving with HPP- Nele
My name is Nele from Belgium and I have hypophosphatasia. The first time I heard about HPP the look on...
Read MoreLiving with HPP- Amy W.
My name is Amy. I am a 53 year old newly diagnosed member of the HPP community. I have been...
Read MoreLiving with HPP- Leia
Hi, my name is Laura Vondrick and I’m writing on behalf of my daughter Leia who was diagnosed with HPP...
Read MoreLiving with HPP: Sue K.
Born in 1960 with broken bones and a large fontanel they knew something was wrong. By the age of 3...
Read MoreMy Journey with HPP Began When I Was 16
My journey with HPP began when I was 16 but I just didn’t know it. My husband, Donnie and I...
Read MoreLiving with HPP: Cheryl
Hello, my name is Cheryl Jackson and my journey with HPP began last December when I was diagnosed at the...
Read MoreLiving with HPP: Cami
My name is Cami Rush and I am the mother to three children. I have an 18 year old son, Connor...
Read MoreLiving with HPP: Chris
I became aware of HPP when I was about 38 years old, but in retrospect I’ve been on this journey...
Read MoreAubrey’s Journey with HPP
Have you ever had the ultrasound tech stop what she was doing, and say she needed to go get the...
Read MoreBlynda’s Journey with HPP
When I was born in 1968, my parents assumed everything was fine. They took me home and being her 1st...
Read More