Parents of 9-Year-Old with Rare Genetic Condition Help Raise Awareness

When I was born in 1968, my parents assumed everything was fine. They took me home and being her 1st child, my mom thought everything…

Born in 1960 with broken bones and a large fontanel they knew something was wrong. By the age of 3 months and my failure to…

I was 22 years old when you were born and had a kindergartner, your brother, as well. I knew something was going on with you,…

My name is Cindy. I was diagnosed with Hypophosphatasia before I was 2yrs old. This was back in the early 1970’s. They didn’t know much…

My HPP story started at a very young age. I was quite young and our bedroom was upstairs, and the bathroom was downstairs. I would…