Orphan Diseases Look For Parents With A Cure

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Hi, we are twin sisters Amy and Suzanne, we have been dealing with symptoms of HPP for a lifetime. Our diagnosis seemed as though it…
We are all told to stay away from “Dr. Google”; however, in the case of our son’s diagnosis of Hypophosphatasia (HPP), we were glad that…
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Hi Everyone, Instead of Rachel and I (Christine) writing two separate stories, we thought that since our lives are so intertwined, it is best to…
Hi, my name is Danielle and my children Grayson (8yrs) and Briley (4yrs) have odonto/mild childhood Hypophosphatasia. We live in Austin, TX. My family and…
The US Hypophosphatasia Foundation
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