New insights into the landscape of ALPL gene variants in patients with hypophosphatasia from the Global HPP Registry
To read more please click on the link below. Read Article
Improvement in quality of life after asfotase alfa treatment in adults with pediatric-onset hypophosphatasia: data from 5 patient-reported outcome measures
To read more please click on the link below. Read Article
Hypophosphatasia Presenting as a Chronic Diffuse Pain Syndrome with Extra-Articular Calcifications
To read more please click on the link below. Read Article
Detection of hypophosphatasia in hospitalised adults in rheumatology and internal medicine departments: a multicentre study over 10 years
To read more please click on the link below. Read Article
Use of Complementary and Alternative Medicine in Patients with Rare Bone Diseases and Osteoporosis
To read more please click on the link below. Read Article
Diagnosis and treatment of adult hypophosphatasia: Still a big challenge?
To read more please click on the link below. Read Article
Meet Blynda Kellner
Meet Blynda Kellner Relationship to HPP: I was diagnosed with HPP around 6 months old. Joined: I found Soft Bones, I think in 2015. I’m…
Patient of the Month- Juliana R.
If you would like to make a donation to Soft Bones in honor of Juliana, please click the button below! Donate Here This story starts…
Meet Margaret Robb
Meet Margaret Robb What is your relationship to HPP? I am the Communications Manager and Patient/Caregiver Navigator. I create content for our social media platforms…
Patient of the Month- Ray T.
If you would like to make a donation to Soft Bones in honor of Ray, please click the button below! Donate Here If you were…