New Story

My HPP story started at a very young age. I was quite young and our bedroom was upstairs, and the bathroom was downstairs. I would…

We are all told to stay away from “Dr. Google”; however, in the case of our son’s diagnosis of Hypophosphatasia (HPP), we were glad that…

When I found out I was pregnant, the thought of my innocent little baby having an ultra-rare disease never crossed my mind. I was asking…

Jaycob’s journey began April 24th, 2016. Jaycob was born 5 weeks early and spent 5 days in the NICU.  Once born he had to have…