Mel Williams was diagnosed with Hypophosphatasia at 52 – despite living with symptoms for her whole life
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If you would like to make a donation to Soft Bones in honor of Emily, please click the button below! Donate Here Hi, this is…
When I found out I was pregnant, the thought of my innocent little baby having an ultra-rare disease never crossed my mind. I was asking…
When I found out I was pregnant, the thought of my innocent little baby having an ultra-rare disease never crossed my mind. I was asking myself questions like “Is it going to be a boy or a girl?”, “Am I going to be a good mother?”, “What am I going to name him/her?”. Then during …
WRITTEN BY JULIA C. If you sat in a class with me, there are a few things you might notice right away. I talk a…
My name is Sherri Palackdharry, I have Hypophosphatasia along with two of my daughters, Maya, 16 and Syreeta, 21. Our journey began when Maya was…
Mail Address
The US Hypophosphatasia Foundation
141 Hawkins Place, #267
Boonton, NJ 07005, USA.
Office Address
1719 NJ-10,
Parsippany, NJ 07054
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