HPP Community
Soft Bones amplifies the voice and the needs of the HPP community. It is our goal to empower, educate and connect with the goal of a cure.
Bone Zone
HPP AND ME
Read about HPP patients, their stories of diagnosis and living with the disease in our blog, Bone Zone.
Make A Difference.
Photo Gallery
Read about HPP patients, their stories of diagnosis and living with the disease in our blog, Bone Zone.
Meet Me Monday
Come meet the Soft Bones’ staff members, Region Leads, moderators, and volunteers that make our mission a reality.
2024 Cannonball 5K Run, Roll, or Stroll
OnlineIt’s time to Run, Roll, or Stroll! Registration for Soft Bones 3rd annual Cannonball 5K Run, Roll or Stroll is NOW LIVE! Now until October…
Southeast Region Zoom Meeting and Chat
OnlineDo you live in Alabama, Georgia, Florida, Mississippi, North Carolina, South Carolina, or Tennessee? Join Region Leads, Blynda Kellner and Scott Galvin, for a…
Appy Hour
OnlineThe myHPP app was developed by patients and physicians to transform patient care and inform hypophosphatasia research. It puts patients in charge of tracking their…
Southwest Region Meeting
Buca di Beppo Mesa 1730 South Val Vista Drive, AZ, United StatesSouthwest Region Meet-Up Opportunity Do you live in Arizona, Hawaii, Nevada, New Mexico, Southern California or Utah? Join Region Leads, Sue Krug and Amy…
Indiana In-Person Cannonball 5K Run, Roll, or Stroll Meet-Up
Hargan-Matthews Park 101 E Vaughn Dr., Madison, United StatesWe are calling all HPP members near Indiana. Join region lead Cindy R. for an in-person Cannonball 5K in Historic Downtown Madison, Indiana. Meet…
Join Us for an In-Person Northeast Region Meeting
Soft Bones Headquarters 1719 NJ-10, Parsippany, United StatesRegistration is now open for the Northeast in-person meeting on October 26, 2024. Do you live in Connecticut, DC, Delaware, Maine, Maryland, Massachusetts, New…
Northeast Region In-Person Cannonball 5K Run, Roll, or Stroll Meet-Up
Soft Bones Headquarters 1719 NJ-10, Parsippany, United StatesDo you live in Connecticut, DC, Delaware, Maine, Maryland, Massachusetts, New Hampshire, New Jersey, New York, Pennsylvania, Rhode Island, Vermont, or Virginia? Join Region…
Join Us for an In-Person Northwest Region Meeting
Starbucks - Palisades Plaza 1410 E Roseville Pkwy, Roseville, CADo you live in Alaska, Idaho, Montana, Northern California, Oregon, or Washington? Please join region lead, Haley T. on November 2nd at 10 AM…
Calendar of Events
We are continually creating and updating resources and events to provide patients, caregivers and the medical community with the latest information about HPP.
