HPP Community
Soft Bones amplifies the voice and the needs of the HPP community. It is our goal to empower, educate and connect with the goal of a cure.
Bone Zone
HPP AND ME
Read about HPP patients, their stories of diagnosis and living with the disease in our blog, Bone Zone.
You Can Make A Difference.
Photo Gallery
Read about HPP patients, their stories of diagnosis and living with the disease in our blog, Bone Zone.
Meet Me Monday
Come meet the Soft Bones’ staff members, Region Leads, moderators, and volunteers that make our mission a reality.
HPP AND ME Live Zoom Chat
OnlineRegister for your spot today! Join us on November 21st at 2 PM Eastern for an HPP AND ME Zoom Chat. Connect with others and…
STRENSIQ Perspectives
OnlineGain a new perspective on treatment! Join Alexion, AstraZeneca on December 3rd at 7:00 PM Eastern for a virtual meeting. Learn how to navigate…
3rd Annual Denim and Diamonds Fundraiser – SAVE THE DATE
Harvest Hall at Alstede Farms 100 Rte 24, Chester, United StatesSave the Date! Join us for our 3rd Annual Soft Bones Denim and Diamonds fundraiser at Harvest Hall in Chester, NJ. Date: Saturday,…
2025 National Patient Meeting – SAVE THE DATE
Great Wolf Lodge (Williamsburg, VA) 549 E Rochambeau Dr, Williamsburg, VA, United StatesSave the Date! Join us for the 2025 National Patient Meeting in Williamsburg, VA. This important event will bring together HPP community members to…
Calendar of Events
We are continually creating and updating resources and events to provide patients, caregivers and the medical community with the latest information about HPP.
