Gene Therapy Webinar
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HPP: Assembling and Coordinating Your Personal Care Team Webinar
On October 30, 2019 Soft Bones held a webinar featuring Drs. Jill Simmons and Kathryn Dahir from Vanderbilt University Medical Center as they explain how…
Isabella and Julia
They are identical mirror twins who overcame all odds to survive their arrival. Isabella & Julia were born at 35 weeks and 6 days. Brought…
HPP Genetics Boot Camp – Learning More About ALPL Gene Changes and HPP in Families
Presented by The Soft Bones Foundation. Do you have questions about your family’s diagnosis of Hypophosphatasia? Are you uncertain what the risk is for other…
Patient of the Month- Janni K.
If you would like to make a donation to Soft Bones in honor of Janni, please click the button below! Donate Here My name is…
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