Living with HPP


Sub Forums

  • A forum for discussion of alternative therapies for HPP symptom management.
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  • In especially severe cases of HPP, defective skeletal mineralization may cause the skull bones not to grow or…
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  • HPP Effects on Teeth When properly mineralized, a substance called cementum coats each tooth root allowing it to…
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  • This forum is a place to share experiences and support each other through the emotional impact of living…
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  • For general questions that fall outside our Community Forums.
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  • HPP is a genetic disease and this forum was created for discussion of genetic-related topics.
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  • A place for new parents of HPP babies to share experiences and ask questions.
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  • This forum is for questions about the neurochemistry of HPP.
  • HPP Effects on Joints Patients with HPP may seem to have inflamed widened joints, but this can instead…
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  • PT can help reduce pain and increase range of motion. Ask questions about physical therapy in this forum.
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  • HPP Effects on Kidneys - In infants with especially severe HPP, the block in bone mineralization can put…
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  • HPP Effects on Ribs In severe pediatric HPP, poorly mineralized ribs within the skeleton can cause deformities consistent…
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  • This forum is for people who are on asfotase alfa therapy or considering therapy.
  • This forum was created as a place to discuss experiences with dietary supplements and approaches to help with…
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