Living with HPP

Sub Forums

• Alternative Therapies for HPP

  A forum for discussion of alternative therapies for HPP symptom management.

  No Discussions

• Craniosynostosis and Chiari Malformation

  In especially severe cases of HPP, defective skeletal mineralization may cause the skull bones not to grow or…

  No Discussions

• Dental

  HPP Effects on Teeth When properly mineralized, a substance called cementum coats each tooth root allowing it to…

  No Discussions

• Emotional Health

  This forum is a place to share experiences and support each other through the emotional impact of living…

  No Discussions

• General HPP Questions

  For general questions that fall outside our Community Forums.

  No Discussions

• Genetics and Inheritance

  HPP is a genetic disease and this forum was created for discussion of genetic-related topics.

  No Discussions

• HPP Newborns

  A place for new parents of HPP babies to share experiences and ask questions.

  No Discussions

• Neurological Topics

  This forum is for questions about the neurochemistry of HPP.

  3 years, 4 months ago

• Orthopedics

  HPP Effects on Joints Patients with HPP may seem to have inflamed widened joints, but this can instead…

  No Discussions

• Physical Therapy

  PT can help reduce pain and increase range of motion. Ask questions about physical therapy in this forum.

  No Discussions

• Renal/Nephrology/Kidney

  HPP Effects on Kidneys - In infants with especially severe HPP, the block in bone mineralization can put…

  No Discussions

• Respiratory

  HPP Effects on Ribs In severe pediatric HPP, poorly mineralized ribs within the skeleton can cause deformities consistent…

  No Discussions

• Strensiq

  This forum is for people who are on asfotase alfa therapy or considering therapy.

  3 years, 4 months ago

• Supplements and Dietary Questions

  This forum was created as a place to discuss experiences with dietary supplements and approaches to help with…

  No Discussions