Living with HPP

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Sub Forums

  • Alternative Therapies for HPP

    A forum for discussion of alternative therapies for HPP symptom management.
    No Discussions

  • Craniosynostosis and Chiari Malformation

    In especially severe cases of HPP, defective skeletal mineralization may cause the skull bones not to grow or to prematurely…
    No Discussions

  • Dental

    HPP Effects on Teeth When properly mineralized, a substance called cementum coats each tooth root allowing it to anchor properly to the…
    No Discussions

  • Emotional Health

    This forum is a place to share experiences and support each other through the emotional impact of living with a chronic, rare disease.
    No Discussions

  • General HPP Questions

    For general questions that fall outside our Community Forums.
    No Discussions

  • Genetics and Inheritance

    HPP is a genetic disease and this forum was created for discussion of genetic-related topics.
    No Discussions

  • HPP Newborns

    A place for new parents of HPP babies to share experiences and ask questions.
    No Discussions

  • Neurological Topics

    This forum is for questions about the neurochemistry of HPP.
    4 years, 6 months ago

  • Orthopedics

    HPP Effects on Joints Patients with HPP may seem to have inflamed widened joints, but this can instead reflect irregular…
    No Discussions

  • Physical Therapy

    PT can help reduce pain and increase range of motion. Ask questions about physical therapy in this forum.
    No Discussions

  • Renal/Nephrology/Kidney

    HPP Effects on Kidneys – In infants with especially severe HPP, the block in bone mineralization can put excessive levels of calcium into…
    No Discussions

  • Respiratory

    HPP Effects on Ribs In severe pediatric HPP, poorly mineralized ribs within the skeleton can cause deformities consistent with the…
    No Discussions

  • Strensiq

    This forum is for people who are on asfotase alfa therapy or considering therapy.
    4 years, 6 months ago

  • Supplements and Dietary Questions

    This forum was created as a place to discuss experiences with dietary supplements and approaches to help with symptom management.
    No Discussions
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Boonton, NJ 07005, USA.

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