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Join Us for an In-Person Northeast Region Meeting

Soft Bones Headquarters 1719 NJ-10, Parsippany, United States

Preview Changes (opens in a new tab) Do you live in Connecticut, DC, Delaware, Maine, Maryland, Massachusetts, New Hampshire, New Jersey, New York, Pennsylvania, Rhode…

Northeast Region In-Person Cannonball 5K Run, Roll, or Stroll Meet-Up

9-11 Memorial Trail Parking 11 Tabor Road, Morris Plains, NJ, United States

Do you live in Connecticut, DC, Delaware, Maine, Maryland, Massachusetts, New Hampshire, New Jersey, New York, Pennsylvania, Rhode Island, Vermont, or Virginia?   Join Region…

Behind the Mystery of Hypophosphatasia

Online

We are excited to share that our very own Deborah Fowler and Cindy Reasor will be featured on “Behind the Mystery of Hypophosphatasia”.   Behind…

STRENSIQ Perspectives

Online

Gain a new perspective on treatment!   Join Alexion, AstraZeneca on October 30th at 7:00 PM Eastern for a virtual meeting on STRENSIQ. Attendees will…

Join Us for an In-Person Northwest Region Meeting

Starbucks - Palisades Plaza 1410 E Roseville Pkwy, Roseville, CA

Do you live in Alaska, Idaho, Montana, Northern California, Oregon, or Washington?   Please join region lead, Haley T. on November 2nd at 10 AM…

Appy Hour

Online

The myHPP app was developed by patients and physicians to transform patient care and inform hypophosphatasia research. It puts patients in charge of tracking their…

HPP AND ME Live Zoom Chat

Online

Register for your spot today! Join us on November 21st at 2 PM Eastern for an HPP AND ME Zoom Chat. Connect with others and…

STRENSIQ Perspectives

Online

Gain a new perspective on treatment!   Join Alexion, AstraZeneca on December 3rd  at 7:00 PM Eastern for a virtual meeting. Learn how to navigate…

3rd Annual Denim and Diamonds Fundraiser – SAVE THE DATE

Harvest Hall at Alstede Farms 100 Rte 24, Chester, United States

Save the Date!   Join us for our 3rd Annual Soft Bones Denim and Diamonds fundraiser at Harvest Hall in Chester, NJ.   Date: Saturday,…