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HPP AND ME Tutorial

Soft Bones will host an HPP AND ME Zoom Tutorial on February 11, 2025, at 2 PM Eastern. Come learn the tips and tricks on…

HPP Empowered: February 19, 2025 at 7:00 PM Eastern

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Have you or a loved one been diagnosed with hypophosphatasia (HPP)? Join Alexion Pharmaceuticals, Inc. as they host their HPP Empowered virtual educational event on…

Rare Disease Day- One Month Away!

We are one month away from Rare Disease Day! Rare disease affects 1 in 10 Americans. Did you know many great organizations are supporting those…

Show Your Stripes – HPP Chat

Come celebrate Rare Disease Day and Show Your Stripes with us at our Virtual Rare Disease Day HPP Zoom Chat! Join us on February 28,…