It’s time to Run, Roll, or Stroll! Registration for Soft Bones 3rd annual Cannonball 5K Run, Roll or Stroll is NOW LIVE! Now until October…

Preview Changes (opens in a new tab) Do you live in Connecticut, DC, Delaware, Maine, Maryland, Massachusetts, New Hampshire, New Jersey, New York, Pennsylvania, Rhode…

Do you live in Connecticut, DC, Delaware, Maine, Maryland, Massachusetts, New Hampshire, New Jersey, New York, Pennsylvania, Rhode Island, Vermont, or Virginia?   Join Region…

We are excited to share that our very own Deborah Fowler and Cindy Reasor will be featured on “Behind the Mystery of Hypophosphatasia”.   Behind…

Join the Canadian Consortium for Children's Bone Health (CCCBH) for a webinar on October 29, 2024, from 7:00 PM - 9:00 PM Eastern.   This…

Gain a new perspective on treatment!   Join Alexion, AstraZeneca on October 30th at 7:00 PM Eastern for a virtual meeting on STRENSIQ. Attendees will…

You're invited to our World HPP Day Zoom Open House and Halloween Costume Contest!   Join Cindy R. and Sue K. on October 30th from…

Do you live in Alaska, Idaho, Montana, Northern California, Oregon, or Washington?   Please join region lead, Haley T. on November 2nd at 10 AM…

The myHPP app was developed by patients and physicians to transform patient care and inform hypophosphatasia research. It puts patients in charge of tracking their…

Calling all Teen Advisory Council (TAC) teens!    Please join us on November 19th at 8 PM for an exciting presentation by patient and advocate…

Register for your spot today! Join us on November 21st at 2 PM Eastern for an HPP AND ME Zoom Chat. Connect with others and…

Gain a new perspective on treatment!   Join Alexion, AstraZeneca on December 3rd  at 7:00 PM Eastern for a virtual meeting. Learn how to navigate…