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Cannonball 5K Run, Roll, or Stroll

Phoenix, AZ

Join us as we come together as an HPP community to raise global awareness of hypophosphatasia. World HPP Day is our chance as a community…

Botox, Brunch & Bubbly

Enriched Aesthetics 1098 Mt Kemble Ave, Morristown, NJ, United States

Bring a friend or two and join us for a Botox, Brunch, and Bubbly party on November 20th from 11AM - 3PM at Enriched Aesthetics in Morristown,…

HPP TeleECHO: Eye Findings in Hypophosphatasia

Online

Join our HPP TeleECHO: Eye Findings in Hypophosphatasia on January 13th, 2023 at 12PM EST, presented by Mark S. Rollo, O.D.Dr. For more information, contact…

National Patient Meeting 2023

Phoenix, Arizona

Join us for our 2023 National Patient Meeting happening on February 17-18 in Phoenix, Arizona! This important event will bring the HPP community together to…

Rare Disease Day 2023

Online

Raising awareness and generating change for the 300 million people worldwide living with a rare disease, their families and carers. SHARE YOUR COLOURS

HPP AND ME Tutorial #1

Online

Join Soft Bones HPP AND ME community for a tutorial! March 1, 2023 SESSION 1: (1:00 p.m.)  https://us06web.zoom.us/meeting/register/tZUvfuyhqT4sHtVfikHsMID5seFKxt_6sPG5  

HPP AND ME Tutorial #2

Online

  Join Soft Bones HPP AND ME community for a tutorial! March 1, 2023 SESSION 2: (7:00 p.m.) https://us06web.zoom.us/meeting/register/tZwof-ugqzoiHdygHj7Wi4DKOmB9PADf8Q5F  

HPP TeleECHO: ALPL Variant Database

Online

Join our HPP TeleECHO: ALPL Variant Database on March 10th, at 12PM EST, presented by Dr. Wolfgang Hogler. For more information, contact us at ECHO@SoftBones.org…