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  • Cannonball 5K Run, Roll, or Stroll

    Phoenix, AZ

    Join us as we come together as an HPP community to raise global awareness of hypophosphatasia. World HPP Day is our chance as a community…

  • World HPP Day

    Phoenix, AZ

    This year’s theme for World HPP Day is HPP ON THE MOVE – a celebration of movement both physically and metaphorically. Whether you choose to…

  • Botox, Brunch & Bubbly

    Enriched Aesthetics 1098 Mt Kemble Ave, Morristown, NJ, United States

    Bring a friend or two and join us for a Botox, Brunch, and Bubbly party on November 20th from 11AM - 3PM at Enriched Aesthetics in Morristown,…

  • HPP TeleECHO: Eye Findings in Hypophosphatasia

    Online

    Join our HPP TeleECHO: Eye Findings in Hypophosphatasia on January 13th, 2023 at 12PM EST, presented by Mark S. Rollo, O.D.Dr. For more information, contact…

  • National Patient Meeting 2023

    Phoenix, Arizona

    Join us for our 2023 National Patient Meeting happening on February 17-18 in Phoenix, Arizona! This important event will bring the HPP community together to…

  • Rare Disease Day 2023

    Online

    Raising awareness and generating change for the 300 million people worldwide living with a rare disease, their families and carers. SHARE YOUR COLOURS

  • HPP AND ME Tutorial #1

    Online

    Join Soft Bones HPP AND ME community for a tutorial! March 1, 2023 SESSION 1: (1:00 p.m.)  https://us06web.zoom.us/meeting/register/tZUvfuyhqT4sHtVfikHsMID5seFKxt_6sPG5  

  • HPP AND ME Tutorial #2

    Online

      Join Soft Bones HPP AND ME community for a tutorial! March 1, 2023 SESSION 2: (7:00 p.m.) https://us06web.zoom.us/meeting/register/tZwof-ugqzoiHdygHj7Wi4DKOmB9PADf8Q5F