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Region Lead Bi-Monthly Call


FOR SOFT BONES REGION LEADS ONLY: Join the Region Lead bi- monthly call on Thursday October 12th from 7-8 pm EST. For questions reach out…

Southwest Region Virtual Chat

Join Southwest Region Lead, Sue Krug via Zoom for an evening of conversation and friendship as we share stories and experiences with HPP.   All…

HPP AND ME Zoom Tutorial


Soft Bones will be hosting a HPP AND ME Zoom tutorial on Tuesday, October 17th, at 1:00 p.m. EDT. Learn more about the HPP community,…

Midwest 2 Region Patient Meeting

Lake Iola- Interurban Shelter, William H. Graham Park at N. Bond St., Scottsburg, IN 47170

  Region Lead, Cindy Reasor, will host a Midwest 1 get-together on Saturday, October 21st, 2023 from 12-2PM at Lake Iola- Interurban Shelter, William H. Graham…

World HPP Day

Phoenix, AZ

This year we come together to make some noise about HPP! Let's share our stories to raise awareness now and change the future of HPP.

HPP AND ME Live Zoom Chat


Join the HPP community in an HPP AND ME live chat on Monday, October 30th, 2023 at 8:00 p.m. EDT. Meet the faces behind the…

Northwest Region Patient Meeting

Terun Pizzaria 448 California Ave, Palo Alto, CA, United States

Join Soft Bones' Denise Goodbar for a Northwest Region luncheon on Thursday, November 9th, 2023 from 12-2PM at Terun Pizzeria at 448 California Ave, Palo…

Unmask HPP Webinar: Living with HPP


Register Today For This Informative Webinar. Presenter: Laura Cross, MS, CGC Are you navigating an HPP (hypophosphatasia) diagnosis?  Whether you're new to HPP or a…