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2024 Cannonball 5K Run, Roll, or Stroll

Online

It’s time to Run, Roll, or Stroll! Registration for Soft Bones 3rd annual Cannonball 5K Run, Roll or Stroll is NOW LIVE! Now until October…

Southeast Region Zoom Meeting and Chat

Online

Do you live in Alabama, Georgia, Florida, Mississippi, North Carolina, South Carolina, or Tennessee?   Join Region Leads, Blynda Kellner and Scott Galvin, for a…

Appy Hour

Online

The myHPP app was developed by patients and physicians to transform patient care and inform hypophosphatasia research. It puts patients in charge of tracking their…

Southwest Region Meeting

Buca di Beppo Mesa 1730 South Val Vista Drive, AZ, United States

Southwest Region Meet-Up Opportunity  Do you live in Arizona, Hawaii, Nevada, New Mexico, Southern California or Utah?   Join Region Leads, Sue Krug and Amy…

Indiana In-Person Cannonball 5K Run, Roll, or Stroll Meet-Up

Hargan-Matthews Park 101 E Vaughn Dr., Madison, United States

We are calling all HPP members near Indiana.   Join region lead Cindy R. for an in-person Cannonball 5K in Historic Downtown Madison, Indiana. Meet…

Behind the Mystery of Hypophosphatasia

Online

We are excited to share that our very own Deborah Fowler and Cindy Reasor will be featured on “Behind the Mystery of Hypophosphatasia”.   Behind…

Join Us for an In-Person Northeast Region Meeting

Soft Bones Headquarters 1719 NJ-10, Parsippany, United States

Registration is now open for the Northeast in-person meeting on October 26, 2024.   Do you live in Connecticut, DC, Delaware, Maine, Maryland, Massachusetts, New…

Behind the Mystery of Hypophosphatasia

Online

We are excited to share that our very own Deborah Fowler and Cindy Reasor will be featured on “Behind the Mystery of Hypophosphatasia”.   Behind…

STRENSIQ Perspectives

Online

Gain a new perspective on treatment!   Join Alexion, AstraZeneca on October 30th at 7:00 PM Eastern for a virtual meeting on STRENSIQ. Attendees will…

Join Us for an In-Person Northwest Region Meeting

Starbucks - Palisades Plaza 1410 E Roseville Pkwy, Roseville, CA

Do you live in Alaska, Idaho, Montana, Northern California, Oregon, or Washington?   Please join region lead, Haley T. on November 2nd at 10 AM…