Diagnostic delay is common among patients with hypophosphatasia: initial findings from a longitudinal, prospective, global registry

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Hi, my name is Danielle and my children Grayson (8yrs) and Briley (4yrs) have odonto/mild childhood Hypophosphatasia. We live in Austin, TX. My family and…
Hi, we are twin sisters Amy and Suzanne, we have been dealing with symptoms of HPP for a lifetime. Our diagnosis seemed as though it…
Hi, my name is Laura Vondrick and I’m writing on behalf of my daughter Leia who was diagnosed with HPP in July 2020. Our family…
My name is Sherri Palackdharry, I have Hypophosphatasia along with two of my daughters, Maya, 16 and Syreeta, 21. Our journey began when Maya was…
In the spring of 2020, I was officially diagnosed with Hypophosphatasia through genetic testing. In retrospect, the signs and symptoms have been evident since my…
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