Clinical Profiles of Children with Hypophosphatasia prior to Treatment with Enzyme Replacement Therapy: An Observational Analysis from the Global HPP Registry Margaret Robb December 12, 2023 0 Comments To read more please click on the link below. Read Article
Patient of the Month- Cassi K. If you would like to donate to Soft Bones in honor of Cassi, please click the button below! Donate Here Hypophosphatasia Patient of the Month:… Margaret Robb January 1, 2025 0 Comments
Patient of the Month- Alison S. If you would like to donate to Soft Bones in honor of Alison, please click the button below! Donate Here Hi, I’m Alison, and I’m… Margaret Robb May 1, 2025 0 Comments
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Patient of the Month- Amedie P. If you would like to donate to Soft Bones in honor of Amedie, please click the button below! Donate Here Hi!! My name is Amedie.… Margaret Robb April 1, 2025 0 Comments
Impact of muscular symptoms and/or pain on disease characteristics, disability, and quality of life in adult patients with hypophosphatasia: A cross-sectional analysis from the Global HPP Registry To read more please click on the link below. Read Article Margaret Robb November 22, 2023 0 Comments
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