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    Category: HPP Stories

    My Life’s Beginning Chapters: Julia C.

    WRITTEN BY JULIA C. If you sat in a class with me, there are a few things you might notice right away. I talk a…

    taralyn_naslonski
    Taralyn Naslonski November 6, 2020
    0 Comments

    Kamila’s Story

    My name is Kamila. I come from the center of Poland, Lodz city. I am interested in personalism (pedagogy, sociology, psychology) and I love to…

    taralyn_naslonski
    Taralyn Naslonski November 6, 2020
    0 Comments

    Living with HPP- Kirsten

    Two years ago, at the age of 49, I was diagnosed with hypophosphatasia. Married to my high school sweetheart and with two grown sons, nothing…

    taralyn_naslonski
    Taralyn Naslonski November 6, 2020
    0 Comments

    Living with HPP: Kristena

    My name is Kristena and I am one of a 4 generation family that has HPP. I can say for myself this journey has been…

    taralyn_naslonski
    Taralyn Naslonski November 6, 2020
    0 Comments

    Laiken, Rowan and their Family’s HPP Journey

    At fifteen weeks pregnant my husband and I decided to have an elective ultrasound performed for gender confirmation at our local OB/GYN office in Jamestown,…

    taralyn_naslonski
    Taralyn Naslonski November 6, 2020
    0 Comments

    Living with HPP: Larry M.

    My HPP journey started after attending a conference in Phoenix, Arizona in 2017. I brought my son, Zane, who was diagnosed with HPP 19 years…

    taralyn_naslonski
    Taralyn Naslonski November 6, 2020
    0 Comments

    Living with HPP: Lisa’s Journey

    Hello. My name is Lisa and I am 56 years old. I’ll start by saying I’m living a wonderful life. I did however live with…

    taralyn_naslonski
    Taralyn Naslonski November 6, 2020
    0 Comments

    Mei Mei’s Story

    Not long ago, Becky R. and her husband adopted a little baby girl, Mei Mei, from China. When she was first adopted, doctors were worried…

    taralyn_naslonski
    Taralyn Naslonski November 6, 2020
    0 Comments

    Living with HPP: Pennie

    I would guess my HPP journey must have started over 10 years ago, when I began having issues with multiple things. I started with what…

    taralyn_naslonski
    Taralyn Naslonski November 6, 2020
    0 Comments

    Ryan’s Story

    We are all told to stay away from “Dr. Google”; however, in the case of our son’s diagnosis of Hypophosphatasia (HPP), we were glad that…

    taralyn_naslonski
    Taralyn Naslonski November 6, 2020
    0 Comments
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