• About WordPress
    • WordPress.org
    • Documentation
    • Learn WordPress
    • Support
    • Feedback
  • Log In
  • Events
    • View Calendar
Toggle Side Panel
  • DONATE
  • Home Page
  • Printable HPP Resources
  • Patient Stories
  • Webinars
  • Podcasts
  • Emergency Preparedness
  • News
  • Scientific Publications
Toggle Side Panel
Soft Bones Logo
  • About Us
    • Contact Us
  • Newly Diagnosed?
    • Printable HPP Resources
  • Programs and Services
    • Patient Support
    • Youth and Teen
    • Clinician Support
    • Patient Education
    • Policy and Partnerships
  • HPP Community
    • World HPP Day 2025
    • 2025 National Patient Meeting
    • HPP AND ME
    • Bone Zone
    • Region Lead Program
    • Caregiver Corner
    • Meet Me Monday
    • Calendar of Events
  • Research
  • Soft Bones Store
  • Get Involved
    • Calendar of Events
    • 2025 Golf and Pickleball Classic
    • Shop for a Cause
    • Ways to Donate
    • Volunteer
More options
    Sign in
    Generic selectors
    Exact matches only
    Search in title
    Search in content
    Post Type Selectors
    Filter by Categories
    Caregiver Corner
    Childrens Resources
    Emergency
    Fact Sheets
    HPP Stories
    Meet Me Monday
    News
    Newsletters
    Physicians
    Physicians1
    Physicians2
    Podcasts
    Scientific Publications
    Scientific Publications (new)
    Scientific Publications (old)
    Soft Bones Publications
    Translated Soft Bones Publications
    Webinars
    • About Us
      • Contact Us
    • Newly Diagnosed?
      • Printable HPP Resources
    • Programs and Services
      • Patient Support
      • Youth and Teen
      • Clinician Support
      • Patient Education
      • Policy and Partnerships
    • HPP Community
      • World HPP Day 2025
      • 2025 National Patient Meeting
      • HPP AND ME
      • Bone Zone
      • Region Lead Program
      • Caregiver Corner
      • Meet Me Monday
      • Calendar of Events
    • Research
    • Soft Bones Store
    • Get Involved
      • Calendar of Events
      • 2025 Golf and Pickleball Classic
      • Shop for a Cause
      • Ways to Donate
      • Volunteer
    Generic selectors
    Exact matches only
    Search in title
    Search in content
    Post Type Selectors
    Filter by Categories
    Caregiver Corner
    Childrens Resources
    Emergency
    Fact Sheets
    HPP Stories
    Meet Me Monday
    News
    Newsletters
    Physicians
    Physicians1
    Physicians2
    Podcasts
    Scientific Publications
    Scientific Publications (new)
    Scientific Publications (old)
    Soft Bones Publications
    Translated Soft Bones Publications
    Webinars
    Close search

    Category: HPP Stories

    Living with HPP: Cami

    My name is Cami Rush and I am the mother to three children. I have an 18 year old son, Connor (diagnosed with HPP around 18…

    taralyn_naslonski
    Taralyn Naslonski November 6, 2020
    0 Comments

    Living with HPP: Chris

    I became aware of HPP when I was about 38 years old, but in retrospect I’ve been on this journey for a long time –…

    taralyn_naslonski
    Taralyn Naslonski November 6, 2020
    0 Comments

    Aubrey’s Journey with HPP

    Have you ever had the ultrasound tech stop what she was doing, and say she needed to go get the doctor? Well, I have. And…

    taralyn_naslonski
    Taralyn Naslonski November 6, 2020
    0 Comments

    Blynda’s Journey with HPP

    When I was born in 1968, my parents assumed everything was fine. They took me home and being her 1st child, my mom thought everything…

    taralyn_naslonski
    Taralyn Naslonski November 6, 2020
    0 Comments

    Living with HPP: Cindy

    My name is Cindy. I was diagnosed with Hypophosphatasia before I was 2yrs old. This was back in the early 1970’s. They didn’t know much…

    taralyn_naslonski
    Taralyn Naslonski November 6, 2020
    0 Comments

    Living with HPP: Connor

    Howdy! My name is Connor, I’m eighteen years old and I live in San Antonio, Texas! I have been officially diagnosed with HPP for almost…

    taralyn_naslonski
    Taralyn Naslonski November 6, 2020
    0 Comments

    Living with HPP: A St. Louis Shriner’s Trip

    Hi, my name is Danielle and my children Grayson (8yrs) and Briley (4yrs) have odonto/mild childhood Hypophosphatasia. We live in Austin, TX. My family and…

    taralyn_naslonski
    Taralyn Naslonski November 6, 2020
    0 Comments

    Deklyn’s Story

    When my husband and I got pregnant with our first baby, it never crossed my mind that something could possibly be wrong with my child.…

    taralyn_naslonski
    Taralyn Naslonski November 6, 2020
    0 Comments

    Deklyn’s Story

    When my husband and I got pregnant with our first baby, it never crossed my mind that something could possibly be wrong with my child.…

    taralyn_naslonski
    Taralyn Naslonski November 6, 2020
    0 Comments

    Evin’s Story

    In December of 2016 our eleven year old son was diagnosed with Hypophosphatasia (HPP). I could not even say the name correctly at first, let…

    taralyn_naslonski
    Taralyn Naslonski November 6, 2020
    0 Comments
    Load More
    • Facebook
    • Instagram
    November 2025
    M T W T F S S
     12
    3456789
    10111213141516
    17181920212223
    24252627282930
    « Oct    
    • Caregiver Corner
    • Childrens Resources
    • Emergency
    • Fact Sheets
    • HPP Stories
    • Meet Me Monday
    • News
    • Newsletters
    • Physicians
    • Physicians1
    • Physicians2
    • Podcasts
    • Scientific Publications
    • Scientific Publications (new)
    • Scientific Publications (old)
    • Soft Bones Publications
    • Translated Soft Bones Publications
    • Uncategorized
    • Webinars

    Mail Address (P.O Box)
    The US Hypophosphatasia Foundation
    141 Hawkins Place, #267
    Boonton, NJ 07005, USA.

    Organization

    • About Soft Bones
    • Fundraising
    • Soft Bones Store
    • Contact Us
    • About Soft Bones
    • Fundraising
    • Soft Bones Store
    • Contact Us

    Programs

    • Patient Education
    • Patient Support
    • Clinician Education
    • Patient Education
    • Patient Support
    • Clinician Education

    Community

    • Bone Zone
    • HPP AND ME
    • Get Involved
    • Calendar of Events
    • Bone Zone
    • HPP AND ME
    • Get Involved
    • Calendar of Events

    Office Address (Location for meetings and events)
    1719 NJ-10, Suite 315
    Parsippany, NJ 07054

    • Local: (973) 453-3093
    • Toll Free: (866) 827-9937
    • Contact Us
    Donate

    Follow Us on Social Media!

    Instagram Twitter Facebook Linkedin Youtube Spotify

    Disclaimer: This Website is owned by Soft Bones, Inc. All materials contained in this Website (the “Materials”) are either owned by or licensed to us and are protected by intellectual property and other laws. We retain all proprietary rights to the Materials. This Website is copyrighted. All rights are reserved. Except as expressly authorized by us, any use, copy, reproduction, display, performance, modification or retransmission of the Materials is strictly prohibited.