Category: HPP Stories

When my husband and I got pregnant with our first baby, it never crossed my mind that something could possibly be wrong with my child.…

In December of 2016 our eleven year old son was diagnosed with Hypophosphatasia (HPP). I could not even say the name correctly at first, let…

Hello! My name is Susan B. My husband, Robert, and I have one daughter, Olivia. She was diagnosed with HPP at age 2 (about 29…

I was 22 years old when you were born and had a kindergartner, your brother, as well. I knew something was going on with you,…

My name is Heather R. I am a 54 year old, white female, married with twin boys, age 24. I was adopted at 3 months…

They are identical mirror twins who overcame all odds to survive their arrival. Isabella & Julia were born at 35 weeks and 6 days. Brought…

Jaycob’s journey began April 24th, 2016. Jaycob was born 5 weeks early and spent 5 days in the NICU.  Once born he had to have…

This is me, Joann. Living with a rare disease. Hiding for years in my DNA. It snuck up on me in the prime of my…

WRITTEN BY JULIA C. If you sat in a class with me, there are a few things you might notice right away. I talk a…