Category: HPP Stories

Hi, my name is Laura Vondrick and I’m writing on behalf of my daughter Leia who was diagnosed with HPP in July 2020. Our family…

Born in 1960 with broken bones and a large fontanel they knew something was wrong. By the age of 3 months and my failure to…

My journey with HPP began when I was 16 but I just didn’t know it. My husband, Donnie and I have been together since we…

Hello, my name is Cheryl Jackson and my journey with HPP began last December when I was diagnosed at the age of 48, but as…

My name is Cami Rush and I am the mother to three children. I have an 18 year old son, Connor (diagnosed with HPP around 18…

I became aware of HPP when I was about 38 years old, but in retrospect I’ve been on this journey for a long time –…

Have you ever had the ultrasound tech stop what she was doing, and say she needed to go get the doctor? Well, I have. And…

When I was born in 1968, my parents assumed everything was fine. They took me home and being her 1st child, my mom thought everything…

My name is Cindy. I was diagnosed with Hypophosphatasia before I was 2yrs old. This was back in the early 1970’s. They didn’t know much…

Howdy! My name is Connor, I’m eighteen years old and I live in San Antonio, Texas! I have been officially diagnosed with HPP for almost…