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    Category: HPP Stories

    Living with HPP: Cindy

    My name is Cindy. I was diagnosed with Hypophosphatasia before I was 2yrs old. This was back in the early 1970’s. They didn’t know much…

    Taralyn Naslonski November 6, 2020
    0 Comments

    Living with HPP: Connor

    Howdy! My name is Connor, I’m eighteen years old and I live in San Antonio, Texas! I have been officially diagnosed with HPP for almost…

    Taralyn Naslonski November 6, 2020
    0 Comments

    Living with HPP: A St. Louis Shriner’s Trip

    Hi, my name is Danielle and my children Grayson (8yrs) and Briley (4yrs) have odonto/mild childhood Hypophosphatasia. We live in Austin, TX. My family and…

    Taralyn Naslonski November 6, 2020
    0 Comments

    Deklyn’s Story

    When my husband and I got pregnant with our first baby, it never crossed my mind that something could possibly be wrong with my child.…

    Taralyn Naslonski November 6, 2020
    0 Comments

    Deklyn’s Story

    When my husband and I got pregnant with our first baby, it never crossed my mind that something could possibly be wrong with my child.…

    Taralyn Naslonski November 6, 2020
    0 Comments

    Evin’s Story

    In December of 2016 our eleven year old son was diagnosed with Hypophosphatasia (HPP). I could not even say the name correctly at first, let…

    Taralyn Naslonski November 6, 2020
    0 Comments

    Living with HPP: Susan B.

    Hello! My name is Susan B. My husband, Robert, and I have one daughter, Olivia. She was diagnosed with HPP at age 2 (about 29…

    Taralyn Naslonski November 6, 2020
    0 Comments

    Holly’s Story

    I was 22 years old when you were born and had a kindergartner, your brother, as well. I knew something was going on with you,…

    Taralyn Naslonski November 6, 2020
    0 Comments

    Heather R.’s HPP Journey

    My name is Heather R. I am a 54 year old, white female, married with twin boys, age 24. I was adopted at 3 months…

    Taralyn Naslonski November 6, 2020
    0 Comments

    Isabella and Julia

    They are identical mirror twins who overcame all odds to survive their arrival. Isabella & Julia were born at 35 weeks and 6 days. Brought…

    Taralyn Naslonski November 6, 2020
    0 Comments
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    Mail Address (P.O Box)
    The US Hypophosphatasia Foundation
    141 Hawkins Place, #267
    Boonton, NJ 07005, USA.

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