Breakthrough drug gives girl born without bones a new chance at life

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I was 22 years old when you were born and had a kindergartner, your brother, as well. I knew something was going on with you,…
Hi, we are twin sisters Amy and Suzanne, we have been dealing with symptoms of HPP for a lifetime. Our diagnosis seemed as though it…
WRITTEN BY JULIA C. If you sat in a class with me, there are a few things you might notice right away. I talk a…
If you would like to make a donation to Soft Bones in honor of Judith, please click the button below! Donate Here I started life…
If you would like to donate to Soft Bones in honor of Evie, please click the button below! Donate Here This story is written by…
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The US Hypophosphatasia Foundation
141 Hawkins Place, #267
Boonton, NJ 07005, USA.
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Parsippany, NJ 07054
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