Breakthrough drug gives girl born without bones a new chance at life softbones October 20, 2020 0 Comments Print 🖨 PDF 📄To read more please click the link below. View News Article
Holly’s Story Print 🖨 PDF 📄I was 22 years old when you were born and had a kindergartner, your brother, as well. I knew something was going… Taralyn Naslonski November 6, 2020 0 Comments
Patients of the Month- Amy and Suzanne Print 🖨 PDF 📄Hi, we are twin sisters Amy and Suzanne, we have been dealing with symptoms of HPP for a lifetime. Our diagnosis seemed… wpengine June 8, 2022 0 Comments
Patient of the Month- Evie M. Print 🖨 PDF 📄If you would like to donate to Soft Bones in honor of Evie, please click the button below! Donate Here This story… Margaret Robb February 1, 2025 0 Comments
My Life’s Beginning Chapters: Julia C. Print 🖨 PDF 📄WRITTEN BY JULIA C. If you sat in a class with me, there are a few things you might notice right away.… Taralyn Naslonski November 6, 2020 0 Comments
A Family’s Fight Against HPP Print 🖨 PDF 📄On December 21, 2011 our daughter Clara B. was born; at the time we believed she was a beautiful healthy baby girl.… Taralyn Naslonski November 6, 2020 0 Comments
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