Living with HPP: Pennie
I would guess my HPP journey must have started over 10 years ago, when I began having issues with multiple things. I started with what…
Author: Taralyn Naslonski
Ryan’s Story
We are all told to stay away from “Dr. Google”; however, in the case of our son’s diagnosis of Hypophosphatasia (HPP), we were glad that…
Soft Bones HPP Advocacy: It’s All About Family
Hello everyone, my name is Sharon T., and my husband Dave has hypophosphatasia (HPP). He and our family have paid a price in our HPP…
Kara’s Journey with her Daughter
My daughter was only 2 years old when she lost her first tooth. At first my husband and I thought maybe she had an old…
A Family’s Fight Against HPP
On December 21, 2011 our daughter Clara B. was born; at the time we believed she was a beautiful healthy baby girl. Little did we…
Living with HPP: Aubrey’s Story
When I found out I was pregnant, the thought of my innocent little baby having an ultra-rare disease never crossed my mind. I was asking…
Living with HPP: Sara M.
My name is Sara and I have Hypophosphatasia (HPP). I am an individual with a rare disease, a fiancé and mother to two toddlers, a…
Living with HPP: Sherri P.
My name is Sherri Palackdharry, I have Hypophosphatasia along with two of my daughters, Maya, 16 and Syreeta, 21. Our journey began when Maya was…
