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    Author: Margaret Robb

    Patient of the Month- Alana S.

    If you would like to donate to Soft Bones in honor of Alana, please click the button below!  Donate Here I was born with several…

    Margaret Robb October 31, 2024
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    Meet Cindy Reasor

    Meet Cindy Reasor Relationship to HPP: I have HPP. Both of my adult daughters and two granddaughters also have this condition. Joined: I joined the…

    Margaret Robb October 14, 2024
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    Patient of the Month- Kirra S.

    If you would like to make a donation to Soft Bones in honor of Kirra, please click the button below!  Donate Here Kirra was diagnosed…

    Margaret Robb September 30, 2024
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    Meet Lucy George

    Meet Lucy George Relationship to HPP: I am the Patient Engagement Coordinator here at Soft Bones! Joined: I have been here since November 2023, coming…

    Margaret Robb September 16, 2024
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    Caregiver Corner- Sharon T.

    My connection to HPP is my husband David. I support my husband in his HPP journey. The most rewarding aspect of being a caregiving is…

    Margaret Robb September 9, 2024
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    Patient of the Month- Carol K.

    If you would like to make a donation to Soft Bones in honor of Carol, please click the button below!  Donate Here Others have told…

    Margaret Robb September 1, 2024
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    Gene Therapy for Hypophosphatasia: Current Management and Future

    To read more please click on the link below. Read Article

    Margaret Robb August 15, 2024
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    Circulating Micro-RNAs in Patients with Hypophosphatasia Results of the first micro-RNA analysis in HPP

    To read more please click on the link below. Read Article

    Margaret Robb August 15, 2024
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    Enzyme replacement therapy for hypophosphatasia — The current paradigm

    To read more please click on the link below. Read Article

    Margaret Robb August 15, 2024
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    First reported magnesium pyrophosphate kidney stone prompts diagnosis of hypophosphatasia

    To read more please click on the link below. Read Article

    Margaret Robb August 15, 2024
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    Mail Address (P.O Box)
    The US Hypophosphatasia Foundation
    141 Hawkins Place, #267
    Boonton, NJ 07005, USA.

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