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    Author: emma_richter

    Spring 2023 Newsletter

    To view the Newsletter please click the link below. View the Spring 2023 Newsletter

    emma_richter April 8, 2023
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    Patient of the Month- Haley G.

    My name is Haley Gast and I have been diagnosed and living with HPP for just over 33 years. Prior to being diagnosed at 6…

    emma_richter March 31, 2023
    0 Comments

    Soft Bones Very Own Evie Shares Her Story With Charles River Labs in a Podcast And Video

    To read more please click the link below.View Here

    emma_richter March 22, 2023
    0 Comments

    Patient of the Month- Quinn H.

    My name is Quinn Hoover and I am living with HPP. I was born January 12th, 2009, in Omaha, Nebraska.  The first few years of…

    emma_richter March 1, 2023
    0 Comments

    Soft Bones Program and Services Interactive and Printable Infographic

    Please download and view this fact sheet with the link below. Download Fact Sheet

    emma_richter February 24, 2023
    0 Comments

    Patient of the Month- Carol L.

    My HPP story started at a very young age. I was quite young and our bedroom was upstairs, and the bathroom was downstairs. I would…

    emma_richter February 1, 2023
    0 Comments

    Physical Therapy: Dr. Griffin- (2022 Soft Bones Virtual Meeting)

    emma_richter January 10, 2023
    0 Comments

    Craniosynostosis and Chiari Malformation: Dr. Heuer (2022 Soft Bones Virtual Meeting)

    emma_richter January 10, 2023
    0 Comments

    Orthopedics: Dr. Fox- (2022 Soft Bones Virtual Meeting)

    emma_richter January 10, 2023
    0 Comments

    Adult HPP: Dr. Wierenga- (2022 Soft Bones Virtual Meeting)

    emma_richter January 10, 2023
    0 Comments
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