Active search of adult patients with persistently low serum alkaline phosphatase levels for the diagnosis of hypophosphatasia

If you would like to make a donation to Soft Bones in honor of Carol, please click the button below!  Donate Here Others have told…

We are all told to stay away from “Dr. Google”; however, in the case of our son’s diagnosis of Hypophosphatasia (HPP), we were glad that…

My name is Sara and I have Hypophosphatasia (HPP). I am an individual with a rare disease, a fiancé and mother to two toddlers, a…

WRITTEN BY JULIA C. If you sat in a class with me, there are a few things you might notice right away. I talk a…