Improving care pathways for people living with rare bone diseases (RBDs): outcomes from the frst RBD Summit Denise Goodbar August 8, 2023 0 Comments To read more please click on the link below.Read Article
Patient of the Month- Alison S. If you would like to donate to Soft Bones in honor of Alison, please click the button below! Donate Here Hi, I’m Alison, and I’m… Margaret Robb May 1, 2025 0 Comments
Patient of the Month- Stephen A. If you would like to donate to Soft Bones in honor of Stephen, please click the button below! Donate Here Walking the Walk: My Journey… Margaret Robb July 1, 2025 0 Comments
Patient of the Month- Cannon S. If you would like to make a donation to Soft Bones in honor of Cannon, please click the button below! Donate Here Hi! I’m Cannon.… Margaret Robb November 30, 2023 0 Comments
Patient of the Month- Sharon M. My Journey with my Soft Bones: The only hint my parents had that something was wrong with me was my teeth. My baby teeth had… emma_richter January 3, 2023 0 Comments
Isabella and Julia They are identical mirror twins who overcame all odds to survive their arrival. Isabella & Julia were born at 35 weeks and 6 days. Brought… Taralyn Naslonski November 6, 2020 0 Comments
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