How to Talk to Your Family About Your HPP Diagnosis Denise Goodbar September 21, 2022 0 Comments To read the publication please click on the link below. View Resource
Patient of the Month- Amedie P. If you would like to donate to Soft Bones in honor of Amedie, please click the button below! Donate Here Hi!! My name is Amedie.… Margaret Robb April 1, 2025 0 Comments
Patient of the Month- Cassi K. If you would like to donate to Soft Bones in honor of Cassi, please click the button below! Donate Here Hypophosphatasia Patient of the Month:… Margaret Robb January 1, 2025 0 Comments
Patient of the Month- Cass S. If you would like to make a donation to Soft Bones in honor of Cass, please click the button below! Donate Here Cass with her… Margaret Robb December 30, 2023 0 Comments
Patient of the Month- Alana S. If you would like to donate to Soft Bones in honor of Alana, please click the button below! Donate Here I was born with several… Margaret Robb October 31, 2024 0 Comments
Laiken, Rowan and their Family’s HPP Journey At fifteen weeks pregnant my husband and I decided to have an elective ultrasound performed for gender confirmation at our local OB/GYN office in Jamestown,… Taralyn Naslonski November 6, 2020 0 Comments
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