Rare bone disease robbing boy of childhood
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My name is Cami Rush and I am the mother to three children. I have an 18 year old son, Connor (diagnosed with HPP around 18…
If you would like to make a donation to Soft Bones in honor of Peyton, please click the button below! Donate Here Hi! My name…
They are identical mirror twins who overcame all odds to survive their arrival. Isabella & Julia were born at 35 weeks and 6 days. Brought…
If you would like to make a donation to Soft Bones in honor of Judith, please click the button below! Donate Here I started life…
My Journey with my Soft Bones: The only hint my parents had that something was wrong with me was my teeth. My baby teeth had…
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The US Hypophosphatasia Foundation
141 Hawkins Place, #267
Boonton, NJ 07005, USA.
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1719 NJ-10,
Parsippany, NJ 07054
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