Thank You for Supporting
RARE DISEASE DAY
February 28th, 2026
Thank You for Supporting
Rare Disease Day
Feb. 28th, 2026
Rare Disease Day is an annual international event that highlights rare diseases as a public health concern. It occurs on the last day of February. This year, Rare Disease Day is on Saturday, February 28th.
Ways to Get Involved
Donate to Soft Bones
Wear Your HPP Swag
Share Your Story and Listen to Others
Amplify Your Voice
Rare Disease Day Profile Frame
Update your social media profile picture to stripe out for Rare Disease Day!
I Love Someone Rare
I Care About Rare
Rare Disease Day Logo
Our Partners
In addition to supporting patients with hypophosphatasia (HPP), part of our mission is to look for synergies with other organizations to ensure that the needs of our patient community are met. Many issues are common among other rare diseases, such as insurance denials and access issues, which can be more effectively addressed by coming together with other non-profits to amplify our voices.
Some of these groups we frequently partner with are listed below. We encourage you to learn more about our partners and how they can support you and your family. Together, we can join others to help amplify the public health issues we face as a rare community.