Caregiver Corner- Sharon T.

Margaret Robb September 9, 2024

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My connection to HPP is my husband David. I support my husband in his HPP journey.
The most rewarding aspect of being a caregiving is improving the quality of life for my husband.
Biggest challenge. Health care providers not knowing HPP and how to care for my husband.
I practice self care by walking, my faith, time with family, friends, and coffee.
HPP is not the end of your life or your families. Get the help and support you need and move forward each day even if it looks like the pace of a tortoise. Remember in the tortoise and the hare the tortoise won!

Categories: Caregiver Corner

Tags: Advocate, Caregiver, Stories, Support

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The US Hypophosphatasia Foundation
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Boonton, NJ 07005, USA.

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