September 2024 – Soft Bones

Patient of the Month- Kirra S.

If you would like to make a donation to Soft Bones in honor of Kirra, please click the button below! Donate Here Kirra was diagnosed…

Margaret Robb September 30, 2024

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Meet Lucy George

Meet Lucy George Relationship to HPP: I am the Patient Engagement Coordinator here at Soft Bones! Joined: I have been here since November 2023, coming…

Margaret Robb September 16, 2024

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Caregiver Corner- Sharon T.

My connection to HPP is my husband David. I support my husband in his HPP journey. The most rewarding aspect of being a caregiving is…

Margaret Robb September 9, 2024

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Patient of the Month- Carol K.

If you would like to make a donation to Soft Bones in honor of Carol, please click the button below! Donate Here Others have told…

Margaret Robb September 1, 2024

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The US Hypophosphatasia Foundation
141 Hawkins Place, #267
Boonton, NJ 07005, USA.

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