September 2021 – Page 2 – Soft Bones

Medical ID and Hospital Preparedness

To view the emergency card please click on the link below. Medical ID and Hospital Preparedness

Denise Goodbar September 2, 2021

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Medical ID and Hospital Preparedness

Please download and view this fact sheet with the link below. Download Fact Sheet

Denise Goodbar September 2, 2021

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Emergency Scenario Preparedness Guide and Action Plan

To view the emergency card please click on the link below. Emergency Scenario Preparedness Guide and Action Plan

Denise Goodbar September 2, 2021

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Emergency Scenario Preparedness Guide and Action Plan

Please download and view this fact sheet with the link below. Download Fact Sheet

Denise Goodbar September 2, 2021

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Clinical, biochemical and genetic findings in adult patients with chronic hypophosphatasemia

To read more please click on the link below. Read Article

Denise Goodbar September 1, 2021

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Emergency Supply Checklist

To view the emergency card please click on the link below. Emergency Supply Checklist

Denise Goodbar September 1, 2021

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Emergency Supply Checklist

To read the publication please click on the link below. View Resource

Denise Goodbar September 1, 2021

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Key Emergency Contacts and Medical Information Card

To view the emergency card please click on the link below. Key Emergency Contacts and Medical Information Card

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Travel Preparedness Form

To view the emergency card please click on the link below. Travel Preparedness Form

Denise Goodbar September 1, 2021

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Travel Preparedness Form

To read the publication please click on the link below. View Resource

Denise Goodbar September 1, 2021

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Mail Address (P.O Box)
The US Hypophosphatasia Foundation
141 Hawkins Place, #267
Boonton, NJ 07005, USA.

Organization

Programs

Community

Office Address (Location for meetings and events)
1719 NJ-10, Suite 315
Parsippany, NJ 07054

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