December 2020 – Page 2 – Soft Bones

Living with HPP- Leia

Hi, my name is Laura Vondrick and I’m writing on behalf of my daughter Leia who was diagnosed with HPP in July 2020. Our family…

Taralyn Naslonski December 15, 2020

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Potential Ocular Findings Associated with Hypophosphatasia and Its Treatment

Taralyn Naslonski December 15, 2020

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SUN-LB64 Urine Phosphoethanolamine Is an Underutilized Biomarker for Hypophosphastasia

To read more please click on the link below. Read Article

Denise Goodbar December 14, 2020

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SUN-349 Characterizing Functional Performance in Adults with Hypophosphatasia

To read more please click on the link below. Read Article

Denise Goodbar December 14, 2020

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Genotype–Phenotype Associations in 72 Adults with Suspected ALPL-Associated Hypophosphatasia

To read more please click on the link below. Read Article

Denise Goodbar December 14, 2020

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Bone mineral density and fracture risk in adult patients with hypophosphatasia

To read more please click on the link below. Read Article

Denise Goodbar December 14, 2020

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Soft Bones Informational IVF and Genetics Webinar

Taralyn Naslonski December 8, 2020

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Mail Address (P.O Box)
The US Hypophosphatasia Foundation
141 Hawkins Place, #267
Boonton, NJ 07005, USA.

Organization

Programs

Community

Office Address (Location for meetings and events)
1719 NJ-10, Suite 315
Parsippany, NJ 07054

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