Webinars

Webinars

2024 National Patient Meeting (Mason, Ohio)

HPP Overview & Genetics (Howard M. Saal, MD, FACMG)

Rheumatologic Manifestations of Hypophosphatasia (Chad Deal, MD)

Hypophosphatasia and Oral Health (Sarat Thikkurissy, DDS, MS, MA)

Soft Bones Scientific Meeting Recap (Gary S. Gottesman, MD, FAAP, FACMG)

Hypophosphatasia Pain Management (Stacey Feuer, PsyD, MLD)

2023 National Patient Meeting (Phoenix, Arizona)

Psychological Treatment of Pain: Harnessing the Power of the Brain (Arie Zakaryan, PhD)

HPP in children: An alkaline phosphatase dilemma (Pamela SW Smith, MD)

Hypophosphatasia Pain Management (Paola Genovese, MD)

Hypophosphatasia in Adults (Peter Tebben, MD)

2022 National Patient Meeting (Virtual Meeting)

Physical Therapy: Dr. Griffin- (2022 Soft Bones Virtual Meeting)

Craniosynostosis and Chiari Malformation: Dr. Heuer (2022 Soft Bones Virtual Meeting)

Orthopedics: Dr. Fox- (2022 Soft Bones Virtual Meeting)

Adult HPP: Dr. Wierenga- (2022 Soft Bones Virtual Meeting)

Perinatal and Childhood HPP: Dr. Gottesman- (2022 Soft Bones Virtual Meeting)

HPP Overview: Dr. Gottesman- (2022 Soft Bones Virtual Meeting)

Hypophosphatasia Externally-Led Patient Focused Drug Development Meeting (November 2022)

Hypophosphatasia Externally-Led Patient Focused Drug Development Meeting

South West Region Meeting (2022)

Psychological Treatment of Pain: Harnessing the Power of the Brain – Arie Zakaryan, PhD

Orthopedic Aspect of Hypophosphatasia – Melissa Esparza, MD and Mohan Belthur, MD

Hypophosphatasia: A Journey Through Genetics, Features & Therapies – Pamela SW Smith, MD

Hypophosphatasia Pain Management – Paola Genovese, MD

Hypophosphatasia and the Dentist – Charlie Clark, DMD

Hypophosphatasia and the Skull: Craniosynostosis and Head Growth Issues – Ruth Bristol, MD

2021 National Patient Meeting (2021)

Concepts of Pain Management in HPP- (2021 Soft Bones Virtual Meeting)

Impact of Pediatric Hypophosphatasia on Behavioral Health and Quality of Life – (2021 Soft Bones Virtual Meeting)

HPP Overview and Genetics: Dr. Rush – (2021 Soft Bones Virtual Meeting)

Meditation Mindfulness Workshop – (2021 Soft Bones Virtual Meeting)

Neuropathy Overview – (2021 Soft Bones Virtual Meeting)

2020 Soft Bones National Patient Meeting

Your Diet and Hypophosphatasia – (2020 Soft Bones Virtual Meeting)

Hypophosphatasia: Orofacial Manifestations and Management – (2020 Soft Bones Virtual Meeting)

The Emotional Effects of Living with a Chronic Rare Disease – (2020 Soft Bones Virtual Meeting)

Hypophosphatasia Overview – (2020 Soft Bones Virtual Meeting)

HPP Webinar Library

Gene Therapy Webinar

HPP and Teeth: An Introduction

Hypophosphatasia and Orthodontics

Prosthodontic Treatment in Individuals with HPP

The Journey to HPP Diagnosis

Stress Fractures of the Lower Extremity

Enzyme Replacement Therapy Injection Techniques

Understanding the Role of OneSource & PANTHERx Rare in Patient Support

Anxiety and Emotional Health Webinar: Dr. Jen – June 2021

For Clinicians: Oral Manifestations of HPP

The Impact of Hypophosphatasia on the Kidneys

Dental Concerns in Patients with Rare Bone Disorders (OIF)

Hypophosphatasia – Michael Whyte MD (OIF)

Potential Ocular Findings Associated with Hypophosphatasia and Its Treatment

Soft Bones Informational IVF and Genetics Webinar

Soft Bones World HPP Day Wellness Webinar with Dr. Jen

HPP: Assembling and Coordinating Your Personal Care Team Webinar

The Emotional Effects of Living with a Chronic Rare Disease

HPP Genetics Boot Camp – Learning More About ALPL Gene Changes and HPP in Families

Hypophosphatasia Oral Manifestations and Management

Taking a Rare Disease to School

HPP and You – Dr. Sears

The ABCs of ALP: What Is Alkaline Phosphatase and Why Is It Important

The Role of Vitamin B6: Implications for Hypophosphatasia

HPP- A Clinical Overview

Mail Address (P.O Box)
The US Hypophosphatasia Foundation
141 Hawkins Place, #267
Boonton, NJ 07005, USA.

Organization

Programs

Community

Office Address (Location for meetings and events)
1719 NJ-10, Suite 315
Parsippany, NJ 07054

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