Meet Margaret Robb
Meet Margaret Robb What is your relationship to HPP? I am the Communications Manager and Patient/Caregiver Navigator. I create content for our social media platforms…
Meet Margaret Robb What is your relationship to HPP? I am the Communications Manager and Patient/Caregiver Navigator. I create content for our social media platforms…
Meet Sue Krug Relationship to HPP: I am a patient with HPP. I have two mutations, one from each of my parents. Since the moment…
Meet Charlene W. Relationship to HPP: I have worked in the rare bone disease field for many years serving as Executive Director of The Paget’s…
Meet Judith H. Relationship to HPP: Region Lead for Northeast. I have been diagnosed with juvenile-onset HPP. Joined: May 2019. It’ll be five years in…
Meet Nicole B. Relationship to HPP: Region Lead for Midwest 1 Joined: March of 2023. Last summer I hosted my first Soft Bones meeting at…
Meet Denise Goodbar Relationship to HPP: Executive Director at Soft Bones Joined: March of 2015 What do you want the world to know about HPP?…
If you would like to make a donation to Soft Bones in honor of Cass, please click the button below! Donate Here Cass with her…