Rare Disease – Soft Bones

Effects of asfotase alfa in adults with pediatric-onset hypophosphatasia over 24 months of treatment

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Margaret Robb November 22, 2023

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Association of human gut microbiota with rare diseases: A close peep through

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Denise Goodbar June 14, 2022

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The Clinical Picture of Patients Suffering from Hypophosphatasia—A Rare Metabolic Disease of Many Faces

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Denise Goodbar April 11, 2022

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Photographs reveal people behind rare illnesses

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Denise Goodbar July 13, 2021

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Large-scale in Vitro Functional Testing and Novel Variant Scoring via Protein Modeling Provide Insights Into Alkaline Phosphatase Activity in Hypophosphatasia

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softbones October 28, 2020

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Treatment of hypophosphatasia

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softbones October 28, 2020

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Mail Address (P.O Box)
The US Hypophosphatasia Foundation
141 Hawkins Place, #267
Boonton, NJ 07005, USA.

Organization

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Office Address (Location for meetings and events)
1719 NJ-10, Suite 315
Parsippany, NJ 07054

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