Quality Of Life – Soft Bones

Improvement in quality of life after asfotase alfa treatment in adults with pediatric-onset hypophosphatasia: data from 5 patient-reported outcome measures

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Margaret Robb August 15, 2024

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Effects of asfotase alfa in adults with pediatric-onset hypophosphatasia over 24 months of treatment

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Margaret Robb November 22, 2023

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Disease characteristics, disability, and quality of life in adult HPP patients with muscular symptoms and pain without skeletal manifestations – a cross-sectional analysis from the Global HPP Registry

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Denise Goodbar June 14, 2022

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Impact of pediatric hypophosphatasia on behavioral health and quality of life

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Denise Goodbar February 15, 2021

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Reliability and Validity of the 6‐Minute Walk Test in Hypophosphatasia

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softbones October 28, 2020

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Mail Address (P.O Box)
The US Hypophosphatasia Foundation
141 Hawkins Place, #267
Boonton, NJ 07005, USA.

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Office Address (Location for meetings and events)
1719 NJ-10, Suite 315
Parsippany, NJ 07054

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