Emergency – Soft Bones

Emergency Scenario Preparedness Guide and Action Plan

Please download and view this fact sheet with the link below. Download Fact Sheet

Denise Goodbar September 2, 2021

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Emergency Scenario Preparedness Guide and Action Plan

To view the emergency card please click on the link below. Emergency Scenario Preparedness Guide and Action Plan

Denise Goodbar September 2, 2021

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Emergency Supply Checklist

To read the publication please click on the link below. View Resource

Denise Goodbar September 1, 2021

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Emergency Supply Checklist

To view the emergency card please click on the link below. Emergency Supply Checklist

Denise Goodbar September 1, 2021

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Key Emergency Contacts and Medical Information Card

To view the emergency card please click on the link below. Key Emergency Contacts and Medical Information Card

Denise Goodbar September 1, 2021

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Strensiq™ Therapy Emergency Information Card

To view the emergency card please click on the link below. Strensiq™ Therapy Emergency Information Card

softbones October 20, 2020

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General Information Emergency Card Nondrug

To view the emergency card please click on the link below. General Information Emergency Card Nondrug

softbones October 20, 2020

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Mail Address
The US Hypophosphatasia Foundation
141 Hawkins Place, #267
Boonton, NJ 07005, USA.

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Office Address
1719 NJ-10, Suite 315
Parsippany, NJ 07054

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