Region Lead Program

Region Lead Program

The Soft Bones Region program provides localized support to a growing and geographically dispersed HPP community. Region leads are attentive to patient needs and provide multiple contact points throughout the year to connect with HPP members through chats and local meet-ups. Region Leads will also spearhead grassroots awareness, fundraising and policy efforts at the local level. 

Hover over the map to identify your Region and meet your Region Leads based on where you live below. 

Suggest a Location for a Region Meeting

Meet Your Region Leads!

Northeast Region

Do you live in Connecticut, DC, Delaware, Maine, Maryland, Massachusetts, New Hampshire, New Jersey, New York, Pennsylvania, Rhode Island, Vermont, or Virginia? Meet your Region Leads, Chris D. and Judith H.!
Join the Forum

Southeast Region

Do you live in Alabama, Florida, Georgia, Mississippi, North Carolina, South Carolina, and Tennessee? Meet your Region Leads, Blynda K. and Scott G.!
Join the Forum

Midwest 1 Region

Do you live in Illinois, Indiana, Iowa, Minnesota, or Wisconsin? Meet your Region Leads, Cindy R. and Nicole B.!
Join the Forum

Midwest 2 Region

Do you live in Kentucky, Michigan, Ohio, or West Virginia? Meet your Region Leads, Sharon T. and Nichole M.!
Join the Forum

Central Region

Do you live in Arkansas, Colorado, Kansas, Missouri, Nebraska, North Dakota, Oklahoma, South Dakota, or Wyoming? Meet your Region Leads, Susan B., Lindsey W., Nellie S., and Kara S.!
Join the Forum

South Central Region

Do you live in Louisiana or Texas? Meet your Region Leads, Cami R. and Cassandra S.!
Join the Forum

Northwest Region

Do you live in Alaska, Idaho, Montana, Northern California, Oregon, or Washington?
Meet your Region Leads, Ann H. and Hayley T.!
Join the Forum

Southwest Region

Do you live in Arizona, Hawaii, Nevada, New Mexico, Southern California, or Utah? Meet your Region Leads, Amy B. and Sue K.!
Join the Forum

Upcoming Events

Today

Rare Disease Day- One Month Away!

We are one month away from Rare Disease Day! Rare disease affects 1 in 10 Americans. Did you know many great organizations are supporting those…

Show Your Stripes – HPP Chat

Come celebrate Rare Disease Day and Show Your Stripes with us at our Virtual Rare Disease Day HPP Zoom Chat! Join us on February 28,…

STRENSIQ Perspectives – March 11, 2025

Online

Gain a new perspective on treatment!   Join Alexion, AstraZeneca on March 11th at 7:00 PM Eastern for a virtual meeting on STRENSIQ. Attendees will…

2025 Soft Bones National Patient Meeting – Registration is Now Closed

Great Wolf Lodge (Williamsburg, VA) 549 E Rochambeau Dr, Williamsburg, VA, United States

Registration is now closed for the 2025 Soft Bones National Patient Meeting on July 18th - 19th in Williamsburg, VA. Please contact Patient@SoftBones.org to be…

Mail Address (P.O Box)
The US Hypophosphatasia Foundation
141 Hawkins Place, #267
Boonton, NJ 07005, USA.

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Office Address (Location for meetings and events)
1719 NJ-10, Suite 315
Parsippany, NJ 07054

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