Region Lead Program
The Soft Bones Region program provides localized support to a growing and geographically dispersed HPP community. Region leads are attentive to patient needs and provide multiple contact points throughout the year to connect with HPP members through chats and local meet-ups. Region Leads will also spearhead grassroots awareness, fundraising and policy efforts at the local level.
Hover over the map to identify your Region and meet your Region Leads based on where you live below.
Meet Your Region Leads!
Northeast Region
Southeast Region
Midwest 1 Region
Midwest 2 Region
Central Region
South Central Region
Northwest Region
Meet your Region Leads, Ann H. and Hayley T.!
Southwest Region
Upcoming Events
Region Lead Orientation – December 27th
OnlineCalling all new and returning Region Leads for 2025. Please join us on December 27th at 11 AM Eastern for a Region Lead Orientation.…
Region Lead Orientation – January 2nd
OnlineCalling all new and returning Region Leads for 2025. Please join us on January 2nd at 8 PM Eastern for a Region Lead Orientation.…
Region Lead Orientation – January 11th
OnlineCalling all new and returning Region Leads for 2025. Please join us on January 11th at 12 AM Eastern for a Region Lead Orientation.…
Appy Hour
OnlineThe myHPP app was developed by patients and physicians to transform patient care and inform hypophosphatasia research. It puts patients in charge of tracking their…
HPP AND ME Live Zoom Chat
OnlineRegister for your spot today! Join us on January 23, 2025, at 1 PM Eastern for an HPP AND ME Zoom Chat. Connect with others…
Rare Disease Day- SAVE THE DATE
Save the Date! Let's celebrate Rare Disease Day on Friday, February 28, 2025! Materials coming soon...
3rd Annual Denim and Diamonds Fundraiser – SAVE THE DATE
Harvest Hall at Alstede Farms 100 Rte 24, Chester, United StatesSave the Date! Join us for our 3rd Annual Soft Bones Denim and Diamonds fundraiser at Harvest Hall in Chester, NJ. Date: Saturday,…
2025 National Patient Meeting – SAVE THE DATE
Great Wolf Lodge (Williamsburg, VA) 549 E Rochambeau Dr, Williamsburg, VA, United StatesSave the Date! Join us for the 2025 National Patient Meeting in Williamsburg, VA. This important event will bring together HPP community members to…
