Region Lead Program

Region Lead Program

The Soft Bones Region program provides localized support to a growing and geographically dispersed HPP community. Region leads are attentive to patient needs and provide multiple contact points throughout the year to connect with HPP members through chats and local meet-ups. Region Leads will also spearhead grassroots awareness, fundraising and policy efforts at the local level. 

Hover over the map to identify your Region and meet your Region Leads based on where you live below. 

Suggest a Location for a Region Meeting

Meet Your Region Leads!

Northeast Region

Do you live in Connecticut, DC, Delaware, Maine, Maryland, Massachusetts, New Hampshire, New Jersey, New York, Pennsylvania, Rhode Island, Vermont, or Virginia? Meet your Region Leads, Chris D. and Judith H.!
Join the Forum

Southeast Region

Do you live in Alabama, Florida, Georgia, Mississippi, North Carolina, South Carolina, and Tennessee? Meet your Region Leads, Blynda K. and Scott G.!
Join the Forum

Midwest 1 Region

Do you live in Illinois, Indiana, Iowa, Minnesota, or Wisconsin? Meet your Region Leads, Cindy R. and Nicole B.!
Join the Forum

Midwest 2 Region

Do you live in Kentucky, Michigan, Ohio, or West Virginia? Meet your Region Leads, Sharon T. and Nichole M.!
Join the Forum

Central Region

Do you live in Arkansas, Colorado, Kansas, Missouri, Nebraska, North Dakota, Oklahoma, South Dakota, or Wyoming? Meet your Region Leads, Susan B., Lindsey W., Nellie S., and Kara S.!
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South Central Region

Do you live in Louisiana or Texas? Meet your Region Leads, Cami R. and Cassandra S.!
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Northwest Region

Do you live in Alaska, Idaho, Montana, Northern California, Oregon, or Washington?
Meet your Region Leads, Ann H. and Hayley T.!
Join the Forum

Southwest Region

Do you live in Arizona, Hawaii, Nevada, New Mexico, Southern California, or Utah? Meet your Region Leads, Amy B. and Sue K.!
Join the Forum

Upcoming Events

Today

HPP AND ME Live Zoom Chat

Online

Register for your spot today! Join us on January 23, 2025, at 1 PM Eastern for an HPP AND ME Zoom Chat. Connect with others…

New Patient Orientation Meeting

Online

Calling all new HPP patients and individuals new to Soft Bones. Please join us for our New Patient Orientation Meeting on January 23rd, 2025, at…

Region Lead Orientation – January 24

Online

Calling all new and returning Region Leads for 2025.   Please join us on January 24th at 12 PM Eastern for a Region Lead Orientation.…

2025 National Patient Meeting – SAVE THE DATE

Great Wolf Lodge (Williamsburg, VA) 549 E Rochambeau Dr, Williamsburg, VA, United States

Save the Date!   Join us for the 2025 National Patient Meeting in Williamsburg, VA. This important event will bring together HPP community members to…

Mail Address (P.O Box)
The US Hypophosphatasia Foundation
141 Hawkins Place, #267
Boonton, NJ 07005, USA.

Organization

Programs

Community

Office Address (Location for meetings and events)
1719 NJ-10, Suite 315
Parsippany, NJ 07054

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